In other industries, value is defined by the ultimate stakeholder - the one who benefits, or not, from the service. We should do the same in medicine.
I'm an e-patient: equipped, enabled, empowered, engaged. I'm no clinician, but I do everything in my power to help them, to play an active role in my own care, and even in the design of care.
Diagnosed incidentally with stage IV, grade 4 metastatic renal cell carcinoma, I had bone metastases in my femur (which eventually fractured), ulna, and cranium; five metastases in my lungs; and muscle metastases in my thigh and tongue. Yet six months after diagnosis, my treatment ended: I've not had a drop of anything since.
Where does my body end and an invader start? And cancer, a tumor, is something you grow out of your own tissue. How does that happen? Where does medical ability end and start?
Ever tried to get sleep in a hospital? Ever wonder if anyone even taught them what care is? Some hospitals are great, but some sure aren't.